Dementia Care - Issues, Responses and International Perspectives
von: Mala Kapur Shankardass
Springer-Verlag, 2021
ISBN: 9789811638640
Sprache: Englisch
411 Seiten, Download: 7964 KB
Format: PDF, auch als Online-Lesen
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| Acknowledgements | 5 | ||
| Contents | 6 | ||
| About the Editor | 8 | ||
| 1 Introduction Perspectives on Dementia Care—Issues and Responses | 9 | ||
| References | 18 | ||
| 2 Suicide in Dementia | 19 | ||
| Phenomenology | 19 | ||
| Clinical Medicine and Suicide in Dementia | 22 | ||
| Biomarkers for Suicide in Dementia | 26 | ||
| Biomarkers for Suicide | 26 | ||
| Ethics and Policy | 27 | ||
| Conclusion | 29 | ||
| References | 29 | ||
| 3 The Power of Music in the Lives of People Living with Dementia | 33 | ||
| The Power of Music | 34 | ||
| What is So Good About Music for People with Dementia? | 35 | ||
| Different Ways to Use Music | 37 | ||
| As Background or Individually Targeted Music to Alter Mood and Interaction by Stimulating or Calming | 38 | ||
| As a Reminiscence Tool Used as a Way to Trigger Memories | 39 | ||
| As a Stimulation to Encourage and Enable Dancing and Physical Activity | 41 | ||
| Songs to Dance to or Use Different Tempos with | 43 | ||
| As a Personal Playlist Individually Tailored to Each Person, Enhancing Their Sense of Self and Individual Choice | 44 | ||
| As a Way to Give People an Opportunity to Sing Alongside Others | 46 | ||
| Singing Groups | 48 | ||
| Important Aspects of a Singing Group for People with Dementia and Their Carers | 51 | ||
| Summary of the Different Formats and Their Benefits | 53 | ||
| Entertainment From Musicians | 55 | ||
| Conclusion | 55 | ||
| References | 55 | ||
| 4 The McDonaldization of Long-Term Care | 57 | ||
| Introduction | 57 | ||
| Rationalization Processes: Bureaucratization and McDonaldization | 59 | ||
| Efficiency | 60 | ||
| Calculability | 64 | ||
| Predictability | 65 | ||
| Control | 66 | ||
| The Impacts of McDonaldization | 67 | ||
| Conclusion | 70 | ||
| References | 72 | ||
| 5 Delivering Multidisciplinary and Cross-Cultural Education in Dementia Studies | 78 | ||
| Introduction | 79 | ||
| The Need for Dementia Education | 80 | ||
| A Case Study | 81 | ||
| Knowledge Exchange and Peer to Peer Learning | 82 | ||
| Cross-Cultural Learning | 84 | ||
| Inter-Disciplinary Learning | 86 | ||
| Cascading Learning Through Training and Evaluation | 87 | ||
| Discussion | 89 | ||
| References | 90 | ||
| 6 Language Impairments in Dementia: From Word-Finding Difficulties to Everyday Conversation in a Dementia-Friendly Community | 92 | ||
| Introduction | 93 | ||
| Clinical and Neuropsychological Assessments of Language Impairments in Dementia: Biomedical Diagnostic Approaches | 95 | ||
| Variety of Language Impairments Across Clinical States of Dementia: Psycholinguistic Approaches | 98 | ||
| Socio-linguistic Approaches to Understand the Discourse, Language and Message of Dementia | 103 | ||
| Conclusions: Treatment Approaches to Restore Language Functions in Dementia | 106 | ||
| References | 108 | ||
| 7 Psychosocial Rehabilitation of Persons with Dementia in Indian Context | 116 | ||
| The Importance of Making Early Diagnosis | 118 | ||
| Monitoring the General Health and Well-Being | 118 | ||
| Specific Interventions | 119 | ||
| Cognition-Oriented Approaches | 119 | ||
| Emotion-Oriented Approaches | 120 | ||
| Behaviour-Oriented Approaches | 120 | ||
| Stimulation-Oriented Approaches | 120 | ||
| Psychosocial Rehabilitation—An Indian Experience | 121 | ||
| Identification of dementia | 122 | ||
| Domiciliary Care | 123 | ||
| Home Care is Aimed to Provide Better Care in a Familiar Setting | 123 | ||
| Day Care | 123 | ||
| Memory Clinic | 123 | ||
| Support Groups | 124 | ||
| Help Line | 124 | ||
| References | 125 | ||
| 8 Family Caregiving in Dementia in India: Challenges and Emerging Issues | 127 | ||
| Introduction | 127 | ||
| Family Caregiving in Dementia in the Indian Sociocultural Context | 128 | ||
| Emerging Issues and Challenges for Family Caregiving in India | 130 | ||
| Supporting Family Caregivers | 133 | ||
| Family Interventions and Support for Caregivers of People with Dementia | 135 | ||
| Conclusions | 138 | ||
| References | 138 | ||
| 9 Local Strategies of Strengthening the Caregiving Potential of Families of People with Alzheimer’s Disease—Good Practices Introduced in Poland | 143 | ||
| Introduction | 144 | ||
| Epidemiological Risk of Alzheimer’s Disease in the Perspective of Population Ageing | 144 | ||
| Economic Aspects of Caring for People with Dementias | 146 | ||
| Care for People with Alzheimer’s Disease in Poland | 147 | ||
| Local Programme of Financial Support for Caregivers of People with Alzheimer’s Disease-Bon Alzheimer 75 (Care Voucher: Alzheimer 75) | 150 | ||
| Results of Research Conducted Among the Beneficiaries of Alzheimer 75 Voucher Programme | 152 | ||
| Conclusion | 158 | ||
| References | 159 | ||
| 10 Supporting Home-Based Dementia Care | 161 | ||
| Introduction | 162 | ||
| Supporting Home-Based Care | 163 | ||
| Role of Specialist Care Providers | 163 | ||
| Role of Non-specialist Healthcare Providers | 164 | ||
| Other Models of Support | 165 | ||
| Technological Assistance for Home Base Care | 167 | ||
| Other Interventions for Support | 169 | ||
| Community-Based Services and Resources | 169 | ||
| Conclusions | 170 | ||
| References | 171 | ||
| 11 Rehabilitation in Dementia Care | 174 | ||
| Introduction | 174 | ||
| References | 198 | ||
| 12 Psychological Health of Dementia Caregivers: An Overview | 203 | ||
| Introduction | 204 | ||
| Methodology | 208 | ||
| Discussion | 209 | ||
| Effects of Dementia on Informal Caregivers | 209 | ||
| Caregivers’ Mental Health Condition | 210 | ||
| Behavioural and Psychological Symptoms of Dementia (BPSD) Care Recipients and Caregivers’ Mental Health | 211 | ||
| Effect of Socio-demographic and Socio-cultural Factors on Caregivers’ Health | 212 | ||
| Caregiving Related Factors and Caregivers’ Health | 213 | ||
| Conceptualisation of Dementia Among Caregivers | 215 | ||
| Caregiver’s Coping and Intervention Strategies | 216 | ||
| Conclusion | 219 | ||
| References | 220 | ||
| 13 Dementia Care in Malta: Policy, Experiences and Narratives | 231 | ||
| Introduction | 231 | ||
| Dementia Policy in Malta | 233 | ||
| A Juggling Act! Experiences of Informal Carers of Persons with Dementia | 238 | ||
| Experiencing Dementia: A Case Study Narrative | 241 | ||
| Conclusion | 245 | ||
| References | 247 | ||
| 14 Walking a Legal Tightrope: Assessing the Legal Capacity of Persons Experiencing Dementia to Make and Revoke Enduring Powers of Attorney in Australia | 251 | ||
| Introduction | 251 | ||
| The Nature of an Enduring Power of Attorney | 253 | ||
| The Incidence of People Experiencing Dementia in Australia | 256 | ||
| What is Legal Capacity? | 257 | ||
| The Obligations of Lawyers | 263 | ||
| Conclusions | 264 | ||
| Recommendations | 265 | ||
| Cases | 268 | ||
| References | 269 | ||
| 15 Cognitive Impairment and Dementia: A Risk Factor for Elder Abuse and Neglect | 272 | ||
| What is Elder Abuse and Neglect? | 273 | ||
| Dementia | 273 | ||
| Dementia and Elder Abuse and Neglect | 274 | ||
| Barriers to Identifying Elder Abuse and Neglect | 275 | ||
| Theoretical Framework for Understanding the Occurrence of Elder Abuse | 276 | ||
| Responding to Elder Abuse and Neglect | 278 | ||
| Towards a Holistic Approach to Address Elder Abuse and Neglect | 280 | ||
| Conclusion | 282 | ||
| References | 283 | ||
| 16 Ethical Issues in Dementia—Global Challenges | 286 | ||
| Introduction | 286 | ||
| Challenge 1: Ethical Issues Related to the Diagnosis of Dementia | 287 | ||
| Challenge 2: Ethical Issues Related to Driving and Patients with Dementia | 288 | ||
| Challenge 3: Ethical Issues Related to Testamentary Capacity in Patients with Dementia | 289 | ||
| Challenge 4: Ethical Issues in Dementia Clinical Trials and Informed Consent | 289 | ||
| Challenge 5: Ethical Issues in Old-Age Home Residents with Dementia | 291 | ||
| Challenge 6: Therapeutic Lying in Dementia | 291 | ||
| Challenge 7: Ethical Issues with Respect to Biomarkers in Dementia | 292 | ||
| Challenge 8: Ethical Issues with Regard to Genetic Testing in Dementia | 293 | ||
| Challenge 9: Surrogate Decision-Making for Patients with Dementia | 293 | ||
| Challenge 10: Ethical Aspects of Stopping Medication in Dementia | 294 | ||
| Challenge 11: End-of-Life Care and Related Decisions in Patients with Dementia | 294 | ||
| Challenge 12: Living Wills and Advance Directives in Patients with Dementia | 295 | ||
| Challenge 13: Ethical Aspects of Sexual Issues in Patients with Dementia | 296 | ||
| Challenge 14: Covert Medication, Restraint and Its Use in Patients with Dementia | 296 | ||
| Challenge 15: Electronic Tagging of Patients with Dementia | 297 | ||
| Challenge 16: Everyday Ethics in Nursing Homes and Dementia Day Care | 298 | ||
| Challenge 17: Ethics of Neuroimaging in Dementia | 299 | ||
| Conclusions | 299 | ||
| References | 300 | ||
| 17 Technology and Dementia Care—Global Challenges | 304 | ||
| Introduction | 304 | ||
| Different Types of Technology in Dementia Care | 305 | ||
| Role of Technology in Dementia Care | 307 | ||
| Robotics and Dementia | 308 | ||
| Virtual Reality Technology in Dementia Care | 309 | ||
| Electronic Tagging in Dementia | 309 | ||
| Creating Dementia Friendly Technological Environments | 310 | ||
| Disadvantages of Technology for Dementia Care | 310 | ||
| Conclusions | 311 | ||
| References | 311 | ||
| 18 Leap into the Unknown: Artistic Collaboration Across Diagnosis of Dementia | 314 | ||
| Introduction | 315 | ||
| Background | 315 | ||
| Research Methods and Use of Technology | 316 | ||
| Interdependence, Stigma and Shared Practice Across Diagnosis of Dementia | 318 | ||
| Meaning and Gerotranscendence | 322 | ||
| The Significance of the Hand | 323 | ||
| Colour as Connective Tissue | 326 | ||
| A New Landscape to Experience the Unknown | 328 | ||
| The Role of Risk | 330 | ||
| Conclusions and Implications | 332 | ||
| Appendix 1 | 335 | ||
| Appendix 2 | 336 | ||
| Appendix 3 | 337 | ||
| Appendix 4 | 338 | ||
| References | 339 | ||
| 19 Opening the Window: Art Therapy and Nature as Mindfulness Practices with People Living with Dementia | 343 | ||
| Inequities in Dementia Care | 344 | ||
| Creative Arts in Dementia Care | 345 | ||
| Creativity: A Gift of Dementia | 346 | ||
| Resistance to Art Making | 348 | ||
| Nature and Health | 353 | ||
| Nature and Eldercare | 354 | ||
| Eco-Arts Therapy as Mindfulness Practices in Dementia Care | 356 | ||
| Gerontological Lens | 360 | ||
| Nature and Art as a Window | 361 | ||
| References | 363 | ||
| 20 Leaving Life Too Early or Leaving the Decision Too Late in Alzheimer-Type Dementias: Choices and Preferences for Medical Assistance in Dying (MAID) | 366 | ||
| References | 378 | ||
| 21 Dementia in Under 65s—An Overview | 381 | ||
| Introduction | 382 | ||
| Etiology of Early Onset Dementia | 383 | ||
| Risk Factors for Developing Dementia | 384 | ||
| Diagnosing of Early Onset Dementia—Approach to a Case | 385 | ||
| Challenging Behaviour in EOD-Behavioural and Psychological Symptoms of Dementia (BPSD) | 387 | ||
| Management of Early Onset Dementia and BPSDs | 389 | ||
| Differences Between Early Onset Dementia and Late Onset Dementia | 391 | ||
| References | 393 | ||
| 22 Pharmacological Management of Dementia—An Overview | 396 | ||
| Introduction | 396 | ||
| Cholinesterase Inhibitors | 397 | ||
| Tacrine | 397 | ||
| Donepezil | 397 | ||
| Rivastigmine | 398 | ||
| Galantamine | 398 | ||
| Indications | 399 | ||
| Side Effects | 399 | ||
| NMDA Receptor Antagonists | 399 | ||
| Donepezil–Memantine Combination | 400 | ||
| Nootropics | 400 | ||
| Piracetam | 401 | ||
| Curcumin | 401 | ||
| Ginkgo Biloba | 403 | ||
| Huperzine A | 403 | ||
| Piribedil | 404 | ||
| Pyritinol | 405 | ||
| Targeting Amyloid as a Future Disease—Modifying Treatment of Alzheimer’s Disease | 405 | ||
| Secretase Modulators | 405 | ||
| Anti Tau Drugs | 406 | ||
| Conclusions | 408 | ||
| References | 408 |